Communication shutdown!!
Why on earth would i participate?? Why would i consciously cut myself off from friends and family and pay $5 for the privilege of buying one of those red round circles?? Am i mad???
Well yes and no - my sanity is always under question for the sheer fact that i do have so many children and my patience continually being stretched beyond the realms of normal human parameters!! I seem to constantly find myself in situations that on the surface simply do not exist - my life seems to be symbolic of urban legend!! If there is a kink in the system i sure as heck and going to find it!! LOL
But i did it under the guise of trying to fool myself i could for even a few hours understand what it is like for my son every minute, every day, every year of his life. Did i get a feel for it?? Not really - i was more concerned for my friends who were also participating in the shutdown and wondering how they were coping... i'm sure i also have friends betting on if i can last 24hrs without facebooking - i'm blogging people so yes, even though i am sharing, i am not networking on Facebook LMAO I'm deluding myself sitting here believing someone, somewhere, is actually a little despondant i'm not "available"... LOL cheeky - yes, that is me!!!
There has even been dissension in the Autism Army between shut down and speak out!! Recovered Autism sufferers (not cured, that will never happen, recovered is the correct terminology) didn't want to be silent - they wanted to revel in the fact they had worked hard and they wanted to blog to their little hearts contents and scream from the rooftops - and i wholeheartedly agree with them... the dream of my struggling son being literate enough to blog and share his story sends chills up my spine - i would sell my soul to see that happen!! But there seems to be a "war" about staying silent, and speaking out - why???
Why is there this desire for there always to be one correct way in approaching things?? And then why belittle and ridicule others for choosing to take a different approach - we are on the same side here guys!!!!! We are all after the same thing - acceptance, understanding and tolerance. Seems very little chance of that happening from where i sit right now!!
The key thing we are all fighting for is Autism Awareness - whether you have PDD NOS, aspergers, autism, or one of the other variations that comes under the ASD umbrella, you are all on the same team. And then there are the rest of us in the battle - the silent (okay not so much) army, the carers!! Mums, Dads, grandparents, aunts, uncles, siblings, foster parents and paid/voluntary carers who so desperately wish and hope and pray that one day we find that miracle breakthrough treatment - that treament that opens their worlds and allows their child to function on a so called "normal" or acceptable level for society.
Could you imagine what could be accomplished if people stopped infighting and bickering, for one day, and stood united under the one flag?? It's time for people to strive beyond the "normal" and reach for the extra-ordinary; accept there is more than one way to fry an egg and dance and scream out; "We are Autistic, love us the way we are, not how you want us to be!"
Ah well, a girl can dream can't she...
Just as well some of us aim high - i believe we can make it happen, if only for one day in a lifetime....
Why on earth would i participate?? Why would i consciously cut myself off from friends and family and pay $5 for the privilege of buying one of those red round circles?? Am i mad???
Well yes and no - my sanity is always under question for the sheer fact that i do have so many children and my patience continually being stretched beyond the realms of normal human parameters!! I seem to constantly find myself in situations that on the surface simply do not exist - my life seems to be symbolic of urban legend!! If there is a kink in the system i sure as heck and going to find it!! LOL
But i did it under the guise of trying to fool myself i could for even a few hours understand what it is like for my son every minute, every day, every year of his life. Did i get a feel for it?? Not really - i was more concerned for my friends who were also participating in the shutdown and wondering how they were coping... i'm sure i also have friends betting on if i can last 24hrs without facebooking - i'm blogging people so yes, even though i am sharing, i am not networking on Facebook LMAO I'm deluding myself sitting here believing someone, somewhere, is actually a little despondant i'm not "available"... LOL cheeky - yes, that is me!!!
There has even been dissension in the Autism Army between shut down and speak out!! Recovered Autism sufferers (not cured, that will never happen, recovered is the correct terminology) didn't want to be silent - they wanted to revel in the fact they had worked hard and they wanted to blog to their little hearts contents and scream from the rooftops - and i wholeheartedly agree with them... the dream of my struggling son being literate enough to blog and share his story sends chills up my spine - i would sell my soul to see that happen!! But there seems to be a "war" about staying silent, and speaking out - why???
Why is there this desire for there always to be one correct way in approaching things?? And then why belittle and ridicule others for choosing to take a different approach - we are on the same side here guys!!!!! We are all after the same thing - acceptance, understanding and tolerance. Seems very little chance of that happening from where i sit right now!!
The key thing we are all fighting for is Autism Awareness - whether you have PDD NOS, aspergers, autism, or one of the other variations that comes under the ASD umbrella, you are all on the same team. And then there are the rest of us in the battle - the silent (okay not so much) army, the carers!! Mums, Dads, grandparents, aunts, uncles, siblings, foster parents and paid/voluntary carers who so desperately wish and hope and pray that one day we find that miracle breakthrough treatment - that treament that opens their worlds and allows their child to function on a so called "normal" or acceptable level for society.
Could you imagine what could be accomplished if people stopped infighting and bickering, for one day, and stood united under the one flag?? It's time for people to strive beyond the "normal" and reach for the extra-ordinary; accept there is more than one way to fry an egg and dance and scream out; "We are Autistic, love us the way we are, not how you want us to be!"
Ah well, a girl can dream can't she...
Just as well some of us aim high - i believe we can make it happen, if only for one day in a lifetime....
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